Beyond the Web: integrated digital communities

This paper details two case studies exploring integration within digital communities. Three types of integration are introduced – information, technological and online-offline integration. These concepts are explored through two online fan communities and through a mobile web based system. This paper addresses the idea of balance between offline and online spaces; a key research interest of Sillence’s. It tackles the issue of how design can affect the social use of a system and focuses upon the natural use of multiple communication media. The way in which people use and adapt technology to suit their needs is of interest to Sillence in all her work. She was asked to write this paper by the chair of the Web-based Communities Conference: Sillence, E. (2004a). Media Integration within Web Based Communities. In Proceedings of the IADIS International Conference Web Based Communities 2004. Lisbon, Portugal 24-26 March 2004, p175-182. Several papers have argued that involvement in online environments is having a negative social impact. However, her research argues that methodological flaws have encouraged these findings and overlooked the fact that natural settings provide opportunities for the integration of media across an online-offline boundary. Other related publications by her include: Kostakos, V. O’Neill, E., Little, L. & Sillence, E. (2005). The social implications of emerging technologies. Interacting with Computers, 17 (5) 475-483. Sillence, E. & Baber, C. (2004). Integrated Digital Communities: Combining Web-based Interaction with Text Messaging to Develop a System for Encouraging Group Communication and Competition. Interacting with Computers, 16 (1) 93-113 Also edited: Special edition of Interacting with Computers. “The social impact of emerging technologies” 17, 5 (2005

Getting connected- at what cost? Some ethical issues on mobile HCI

The large scale deployment of mobile applications inevitably affects our daily lives and the whole culture. Not all of these effects are desirable. In a market economy, ethical issues are not the foremost drivers in the development of technology. In this paper, we ask whether the mobile human-computer interaction community could take an active role in discussing the issues which really matter in the development of technology for human beings, rather than concentrating on the fine tuning of emerging gadgets

Self-Compassion, Psychological Resilience, and Social Media Use among Thai and British University Students

Previous research has suggested that self-compassion and psychological resilience are likely to be protective factors for young people’s psychological wellbeing during their time at university. However, no research has focused on self-compassion and psychological resilience among Thai and British students. The aims of this study were to explore the factors that affected self-compassion and psychological resilience among Thai and British university students and to explore the role that social media use has on these constructs. A total of 767 university students (482 Thai and 285 British undergraduate students) took part in a questionnaire-based study and 42 students (21 Thai and 21 British undergraduate students) participated in the in-depth interviews. The quantitative data show that gender, year of study as well as social media factors were predictors of self-compassion, while social support and perceived success influenced psychological resilience among Thai and British students. In addition, the qualitative data indicate that Thai and British students encountered similar problems and highlight the role that family and friends had on students’ strategies to deal with their problems compared to teachers and social media. The comparison between the two groups is discussed in relation to social media and cultural factors and the implications for higher education are considered

The Design of Information Technology as Design of the Information Society

The design of technical product is often focused in the development of that particular artefact. However, when we introduce new technology we don’t simply replace old technology with new, but change many things in the whole context of use. With the help of familiar examples from our everyday life we illustrate how far-reaching tiny-looking technological changes may be. Finally, we propose a design model which combines the traditional user-centred design cycle with broader view. The premise of the proposed model is that when designing information technology we fundamentally design information society

Ubiquitous systems and the family: Thoughts about the networked home

Developments in ubiquitous and pervasive computing herald a future in which computation is embedded into our daily lives. Such a vision raises important questions about how people, especially families, will be able to engage with and trust such systems whilst maintaining privacy and individual boundaries. To begin to address such issues, we have recently conducted a wide reaching study eliciting trust, privacy and identity concerns about pervasive computing. Over three hundred UK citizens participated in 38 focus groups. The groups were shown Videotaped Activity Scenarios [11] depicting pervasive or ubiquitous computing applications in a number of contexts including shopping. The data raises a number of important issues from a family perspective in terms of access, control, responsibility, benefit and complexity. Also findings highlight the conflict between increased functionality and the subtle social interactions that sustain family bonds. We present a Pre-Concept Evaluation Tool (PRECET) for use in design and implementation of ubicomp systems

From a good death to a better bereavement? The impact of the end of life experience on bereavement adjustment, a thematic analysis

To date, the majority of research into a good death has focused on the experience of the person who is dying. Taking the perspective of bereaved individuals, this qualitative study explores which elements of the end of life experience constitute a good death and how these elements influence the process of bereavement adjustment. Following interviews with ten bereaved adults four themes were identified which together define a good death; a lack of physical distress, emotional resolution, ‘naming death as death’ and death at ‘the right time’. The value of open communication prior to death is highlighted. For those working with bereaved individuals these results support an understanding of the impact of the manner of death on bereavement adjustment. For those in palliative care settings, potentially modifiable elements of the end of life experience which may support better bereavement are suggested

Changing hospitals, choosing chemotherapy and deciding you’ve made the right choice: Understanding the role of online support groups in different health decision-making activities.

Objective: To investigate the ways in which people use online support groups (OSGs) in relation to their health decision-making and to identify the key features of the resource that support those activities. Method: Eighteen participants who used OSGs for a range of health conditions participated in qualitative study in which they were interviewed about their experiences of using OSGs in relation to decision-making. Exploration of their experiences was supported by discussion of illustrative quotes. Results: Across the health conditions OSGs supported two main decision-making activities: (i) prompting decision making and (ii) evaluating and confirming decisions already made. Depending on the activity, participants valued information about the process, the experience and the outcome of patient narratives. The importance of forum interactivity was highlighted in relation to advice-seeking and the selection of relevant personal experiences. Conclusion: People use OSGs in different ways to support their health related decision-making valuing the different content types of the narratives and the interactivity provided by the resource. Practice implications: Engaging with OSGs helps people in a number of different ways in relation to decision-making. However, it only forms one part of people’s decision-making strategies and appropriate resources should be signposted where possible

Communicating knowledge and embodied experiences of personal menstrual cup use through YouTube

Background: Despite being a normal part of life for many, menstruation is often stigmatized resulting in reduced knowledge of reusable products such as menstrual cups. YouTube videos can raise awareness of menstrual cups and challenge stigma, but little is known about the content creators or what content is communicated in the videos. Aim: Firstly, to examine vlogger characteristics and the content of videos sharing personal experiences of cup use. Secondly, to evaluate the potential of these videos as a way of communicating about menstrual health. Methods: A content analysis of the 100 most popular menstrual cup videos on YouTube followed by a qualitative thematic analysis of 50 videos containing personal experiences. Results: The content of the videos was captured in four themes: embodied knowledge; technology enabled intimacies; persuasive narratives and a collective sense of community. Discussion: Vloggers communicated knowledge and embodied experiences of personal cup use. This represents a step towards destigmatizing menstruation and menstruants’ bodies, but issues around the complexities of vloggers’ motivations and the situatedness of vloggers remain. Conclusions: Given the paucity of information on menstruation and reusable menstrual products, YouTube videos provide a potentially valuable resource for health communication and education especially for younger menstruants

Facebook Social Use and Anxiety: A Replication Attempt

The relationship between social media use and mental health remains under scrutiny by researchers, policy makers, and the general public. Recently, researchers have addressed whether Facebook use is beneficial to people with high social anxiety. The findings from such studies are mixed, partly due to differences in how variables are operationalised. A study by McCord et al (McCord, B., Rodebaugh, T. L., & Levinson, C. A., 2014. Facebook: Social uses and anxiety.  Computers in Human Behavior, 34, 23-27) suggested that the inclusion of a new variable, Facebook-centric social anxiety, helps explain the complex relationship between general social anxiety and frequency of usage of socially-interactive Facebook features. We undertook two studies (N=202 and N=542; majority British and non-student participants) with the aim of replicating McCord et al (2014), using the original measures (general social anxiety, Facebook-centric social anxiety, and frequency of usage of socially-interactive Facebook features). Replicating the original study, we found a significant positive association between general social anxiety and Facebook-centric social anxiety. However, unlike the original study, we did not find evidence that general social anxiety and Facebook-centric social anxiety interacted to predict frequency of usage of socially-interactive Facebook features. We discuss the implications for future research on social Facebook use

A Revised Model of Trust in Internet-Based Health Information and Advice: Cross-Sectional Questionnaire Study

Background: The internet continues to offer new forms of support for health decision making. Government, charity, and commercial websites increasingly offer a platform for shared personal health experiences, and these are just some of the opportunities that have arisen in a largely unregulated arena. Understanding how people trust and act on this information has always been an important issue and remains so, particularly as the design practices of health websites continue to evolve and raise further concerns regarding their trustworthiness.Objective: The aim of this study was to identify the key factors influencing US and UK citizens’ trust and intention to act on advice found on health websites and to understand the role of patient experiences.Methods: A total of 1123 users took part in an online survey (625 from the United States and 498 from the United Kingdom). They were asked to recall their previous visit to a health website. The online survey consisted of an updated general Web trust questionnaire to account for personal experiences plus questions assessing key factors associated with trust in health websites (information corroboration and coping perception) and intention to act. We performed principal component analysis (PCA), then explored the relationship between the factor structure and outcomes by testing the fit to the sampled data using structural equation modeling (SEM). We also explored the model fit across US and UK populations.Results: PCA of the general Web trust questionnaire revealed 4 trust factors: (1) personal experiences, (2) credibility and impartiality, (3) privacy, and (4) familiarity. In the final SEM model, trust was found to have a significant direct effect on intention to act (beta=.59; P<.001), and of the trust factors, only credibility and impartiality had a significant direct effect on trust (beta=.79; P<.001). The impact of personal experiences on trust was mediated through information corroboration (beta=.06; P=.04). Variables specific to electronic health (eHealth; information corroboration and coping) were found to substantially improve the model fit, and differences in information corroboration were found between US and UK samples. The final model accounting for all factors achieved a good fit (goodness-of-fit index [0.95], adjusted goodness-of-fit index [0.93], root mean square error of approximation [0.50], and comparative fit index [0.98]) and explained 65% of the variance in trust and 41% of the variance in intention to act.Conclusions: Credibility and impartiality continue to be key predictors of trust in eHealth websites. Websites with patient experiences can positively influence trust but only if users first corroborate the information through other sources. The need for corroboration was weaker in the United Kingdom, where website familiarity reduced the need to check information elsewhere. These findings are discussed in relation to existing trust models, patient experiences, and health literacy